Riquelme, I.; Sabater-Gárriz, Á.; Montoya, P.
[eng] Cerebral palsy (CP) is an impacting chronic condition. Concomitant comorbidities such as</em></p><p>pain and speech inability may further affect parents’ perception of the pathology impact in the family</p><p>pain and speech inability may further affect parents’ perception of the pathology impact in the family</p><p>quality of life and the provided care. The objective of this cross-sectional descriptive correlational</p><p>study was to compare parental reports on family impact and healthcare satisfaction in children with</p><p>CP with and without chronic pain and with and without speech ability. Parents of 59 children with CP</p><p>(age range = 4–18 years) completed several questions about pain and speech ability and two modules</p><p>of the Pediatric Quality of Life Measurement Model: The PedsQLTM 2.0 Family Impact Module and</p><p>the PedsQLTM Healthcare Satisfaction Generic Module. Our findings revealed that children’s pain</p><p>slightly impacted family physical health, social health and worry. In children without pain, speech</p><p>inability increased the perceived health impact. Parents’ healthcare satisfaction was barely affected</p><p>by pain or speech inability, both increasing parents’ satisfaction in the professional technical skills and</p><p>inclusion of family domains on the care plan. In conclusion, pain and speech inability in children with</p><p>CP can impact family health but not healthcare satisfaction. Regular assessment and intervention in</p><p>family health is essential for the design of family-centred programs for children with CP.</p>...